NF-WEB DISCUSSION BOARD:

It is so frustrating when a doctor doesn't know. I get it, there are SO many unknown/rare diseases, conditions, etc, it is hard for them too. I am gla...

Thank you for all your great work as a teacher!

@mghnfw18 I am sorry to hear this. I work in marketing with audiologists. I've seen situations like yours all too often. Helping to educate those in y...

I don't think NF itself weighs me down or affects my daily life. I never had visible neurofibromas until I had my children. I am discouraged you can s...